FINDING A RARE DISEASE DIAGNOSIS SHOULDN'T BE AN ODYSSEY.

Join us in fighting to reduce the barriers in rare disease diagnostics.

Collaborating with industry leaders, rare disease patient organizations, and government institutions, we’ve developed a comprehensive summary report detailing the barriers to collaboration and potential solutions.

Those impacted by rare diseases often face uncertainty and concern, especially in light of the often-delayed diagnostic process. Hear from those impacted themselves as they address common misconceptions, share their personal stories, and shine a light on the challenges faced when attempting to find a correct diagnosis.

Where there is a will, there is a way.

Luckily, the challenges presented here are not insurmountable. With collaboration between clinicians, researchers, industry, payers, and government, progress can be accelerated. The science of rare disease diagnosis is moving fast – the collective healthcare systems just need to accelerate changes to realize the potential of these discoveries.

The roundtable and report was sponsored by

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